Pinboard (jm)
https://pinboard.in/u:jm/public/
recent bookmarks from jmOpinion: Why has the State invested €70m in a private company to look at our genetic data?2020-02-17T17:28:43+00:00
https://www.thejournal.ie/readme/dna-privacy-commercial-research-5002574-Feb2020/
jmIn the UK, the publicly-funded 100,000 Genomes Project is attempting to sequence 100,000 genomes from 85,000 NHS patients. It is a private company, owned by the Department of Health and Social Care, that partners with industry and has transparent policies in place on ethics, access to the genetic data and engagement with patients and the public.
Ireland too has decided to invest in genomic medicine. Rather than ensure that this investment is in a manner that best serves the Irish public, €73.5 million was given to Genomic Medicine Ireland (GMI), a company owned by the Chinese pharmaceutical company WuXi with zero public ownership, to sequence the genomes of 400,000 Irish people. This investment has serious legal and ethical concerns that are likely to negatively impact genomic research in Ireland.
]]>ireland genomics genomes medicine health future china wuxi gmihttps://pinboard.in/https://pinboard.in/u:jm/b:a78e1e275c03/Crumlin hospital sent DNA off without consent2019-01-28T12:38:30+00:00
https://www.thetimes.co.uk/article/crumlin-hospital-sent-dna-off-without-consent-mm5crwng0
jmwuxi-nextcode genomics genomes data-privacy privacy crumlin-hospital genes ireland gdprhttps://pinboard.in/https://pinboard.in/u:jm/b:486d52427b73/