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recent bookmarks from jmLatest Long Covid estimates2022-10-19T10:07:45+00:00
https://jamanetwork.com/journals/jama/fullarticle/2797443
jmA total of 1.2 million individuals who had symptomatic SARS-CoV-2 infection were included (mean age, 4-66 years; males, 26%-88%). In the modeled estimates, 6.2% (95% uncertainty interval [UI], 2.4%-13.3%) of individuals who had symptomatic SARS-CoV-2 infection experienced at least 1 of the 3 Long COVID symptom clusters in 2020 and 2021, including 3.2% (95% UI, 0.6%-10.0%) for persistent fatigue with bodily pain or mood swings, 3.7% (95% UI, 0.9%-9.6%) for ongoing respiratory problems, and 2.2% (95% UI, 0.3%-7.6%) for cognitive problems after adjusting for health status before COVID-19, comprising an estimated 51.0% (95% UI, 16.9%-92.4%), 60.4% (95% UI, 18.9%-89.1%), and 35.4% (95% UI, 9.4%-75.1%), respectively, of Long COVID cases. The Long COVID symptom clusters were more common in women aged 20 years or older (10.6% [95% UI, 4.3%-22.2%]) 3 months after symptomatic SARS-CoV-2 infection than in men aged 20 years or older (5.4% [95% UI, 2.2%-11.7%]). Both sexes younger than 20 years of age were estimated to be affected in 2.8% (95% UI, 0.9%-7.0%) of symptomatic SARS-CoV-2 infections. The estimated mean Long COVID symptom cluster duration was 9.0 months (95% UI, 7.0-12.0 months) among hospitalized individuals and 4.0 months (95% UI, 3.6-4.6 months) among nonhospitalized individuals. Among individuals with Long COVID symptoms 3 months after symptomatic SARS-CoV-2 infection, an estimated 15.1% (95% UI, 10.3%-21.1%) continued to experience symptoms at 12 months.
]]>long-covid statistics disease covid-19 papers jama disabilityhttps://pinboard.in/https://pinboard.in/u:jm/b:cf65bc10f43a/What causes Long Covid? Here are the three leading theories | Science | AAAS2022-06-20T10:14:27+00:00
https://www.science.org/content/article/what-causes-long-covid-three-leading-theories
jmIncreasingly, researchers want to fine-tune how they classify people with Long Covid, differentiating subsets based on symptoms, biology, or both. In a way, “the biggest obstacle that we are facing is we gave it one name, we gave it the name of Long Covid, which implies that it is one disease,” says Chahinda Ghossein, a physician and heart disease researcher at Maastricht University and co-leader of a 15,000-patient Long Covid study in the Netherlands. “All the studies being performed show us that it is not.”
]]>covid-19 long-covid health medicine disabilityhttps://pinboard.in/https://pinboard.in/u:jm/b:c44c30ebb840/Two million people in UK living with long Covid2022-06-02T10:57:16+00:00
https://www.theguardian.com/world/2022/jun/01/two-million-people-in-uk-living-with-long-covid-say-studies
jm“They put to rest any vestige of hope that long Covid would somehow be just a thing of the early waves, would diminish in times of vaccination or ‘milder’ variants, or would just trail off. We’ve now created a far larger cohort of the chronically unwell and disabled than we previously had, say, within the entire national burden of rheumatoid arthritis, its healthcare costs, associated loss to quality of life and to the workplace. This couldn’t be further from ‘living with Covid’. It does necessitate some policy discussions, nationally and internationally.”
Sadly, I think the same applies here in Ireland too.]]>epidemic health medicine covid-19 sars-cov-2 long-covid disabilityhttps://pinboard.in/https://pinboard.in/u:jm/b:fa212e64eaee/two-thirds of cyclists with disabilities find cycling easier than walking2019-06-06T09:33:02+00:00
https://nyc.streetsblog.org/2019/06/03/op-ed-breaking-down-barriers-to-disabled-cyclists/
jmAccording to a recent study by Wheels for Well-being, a British organization of disabled cyclists, 15 percent of people with disabilities cycle, compared with 18 percent of the general population. Moreover, two-thirds of cyclists with disabilities find cycling easier than walking, the group says.
Clearly, bikes are not just a mode of transit, but function as mobility devices for many disabled people. I find it ableist, or prejudiced against the disabled, when we consider e-bikes and other adaptive-cycling methods as “inferior.” Many of us can ride a traditional two-wheeled bicycle, but others simply can’t.
]]>cycling disability accessibility cities design cycles disabledhttps://pinboard.in/https://pinboard.in/u:jm/b:c98cd333f1ee/Common Cyborg | Jillian Weise | Granta2018-09-25T14:56:20+00:00
https://granta.com/common-cyborg/
jmWhen I tell people I am a cyborg, they often ask if I have read Donna Haraway’s ‘A Cyborg Manifesto’. Of course I have read it. And I disagree with it. The manifesto, published in 1985, promised a cyberfeminist resistance. The resistance would be networked and coded by women and for women to change the course of history and derange sexism beyond recognition. Technology would un-gender us. Instead, it has been so effective at erasing disabled women that even now, in conversation with many feminists, I am no longer surprised that disability does not figure into their notions of bodies and embodiment. Haraway’s manifesto lays claim to cyborgs (‘we are all cyborgs’) and defines the cyborg unilaterally through metaphor. To Haraway, the cyborg is a matter of fiction, a struggle over life and death, a modern war orgy, a map, a condensed image, a creature without gender. The manifesto coopts cyborg identity while eliminating reference to disabled people on which the notion of the cyborg is premised. Disabled people who use tech to live are cyborgs. Our lives are not metaphors.
(Via Tony Finch)]]>via:dotat cyborg technology feminism essay disability tech jillian-weise grantahttps://pinboard.in/https://pinboard.in/u:jm/b:f30af1357836/How I decoded the human genome - Salon.com2013-05-28T15:54:18+00:00
http://www.salon.com/2003/10/21/genome_5/
jmhuman genome genomics eugenics politics life john-sundman disability health dna medicine salon long-reads childrenhttps://pinboard.in/https://pinboard.in/u:jm/b:20cab9411a13/